Search found 13 matches

by singleprego
Thu May 14, 2015 6:30 pm
Forum: Introductions
Topic: Hey, Im new here and kind of the minority
Replies: 14
Views: 4564

Re: Hey, Im new here and kind of the minority

38 y/o female, RN, dx Sept 2014. Get vibrations in my legs & weakness, lots of fatigue. Fine motor coordination declining (important when drawing up meds), visual acuity steady decline. I went from an active floor nurse to the manager. I think that MS was brought on by the stress of the manageme...
by singleprego
Fri May 01, 2015 7:33 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: How come no one is posting about their CCSVI procure?
Replies: 8
Views: 2382

Re: How come no one is posting about their CCSVI procure?

Thank you for the replies. What keeps you involved in this board?
by singleprego
Thu Apr 09, 2015 5:15 pm
Forum: Medical Marijuana
Topic: Study may explain beneficial effects of marijuana on MS
Replies: 4
Views: 4037

Re: Study may explain beneficial effects of marijuana on MS

I saw the neurologist last Tuesday, since it was my first relapse and all. I started smoking weed again on Monday. Had a J every night. Yesterday I the weakness was worse. Today, 3 days after beginning to smoke again, Im back, almost where I left off. Im really thinking the pot helps.
by singleprego
Thu Apr 09, 2015 5:00 pm
Forum: General Discussion
Topic: America’s National MS Society invests $28m in new research
Replies: 1
Views: 1156

Re: America’s National MS Society invests $28m in new resear

$52m is why having the solution to MS wouldn't be cost effective... Just sayin'.
by singleprego
Thu Apr 09, 2015 4:56 pm
Forum: Undiagnosed
Topic: There's nothing more I can do than write this stuff
Replies: 6
Views: 1530

Re: There's nothing more I can do than write this stuff

Educate your parents about M.S. Hopefully they learn that the disease itself is some fucked up shit. Also the ER will not turn anyone away. A Social Worker there can work with your parents to get insurance.
I wish you well. Hang in there.

Where there's will, there's a way!
by singleprego
Thu Apr 09, 2015 4:33 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: How come no one is posting about their CCSVI procure?
Replies: 8
Views: 2382

Re: How come no one is posting about their CCSVI procure?

Yeah, I don't have a cool 7k handy either. Thanks for sharing. I hope to read about your next liberation soon.
by singleprego
Thu Apr 09, 2015 4:28 pm
Forum: General Discussion
Topic: Optic Neuritis - how long to recover?
Replies: 12
Views: 6738

Re: Optic Neuritis - how long to recover?

I forgot to add that I too got sparklies and the bright flashes. It reminded me of what you see when your pupils dilate after ingesting blotter (that was almost 20 yrs ago, but I still remember). I think its an indication that your eye wiring is getting better.
by singleprego
Thu Apr 09, 2015 4:22 pm
Forum: General Discussion
Topic: Optic Neuritis - how long to recover?
Replies: 12
Views: 6738

Re: Optic Neuritis - how long to recover?

My first attack was ON. My ON experience: That day I had played call of duty - all day. Haven't played it in almost a year so when my left eyeball started to get sore, I thought it I had strained it playing video games. It started to hurt more. My eyeball itself hurt, touching around it didn't. Then...
by singleprego
Wed Apr 08, 2015 4:01 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: How come no one is posting about their CCSVI procure?
Replies: 8
Views: 2382

How come no one is posting about their CCSVI procure?

I haven't read any new posts about someone's recent CCSVI treatment. Are people not having it done anymore or am I looking in the wrong spots?
by singleprego
Wed Apr 08, 2015 3:57 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 773536

Re: CCSVI and CCVBP

I didn't read everyone's conversation but what I picked up in a skim is that the discussion is about vertebral cord compression and fluid restriction. I saw my MRI and at C5 I have an active lesion. C5 is compressing my cord-easily visible on MRI. Over the last few years my chiropractor noticed my C...
by singleprego
Sun Apr 05, 2015 3:58 pm
Forum: Medical Marijuana
Topic: Study may explain beneficial effects of marijuana on MS
Replies: 4
Views: 4037

Re: Study may explain beneficial effects of marijuana on MS

I smoked medical marijuana daily for 5 years, with a year break during. I decided to see what life was like without it last July and about a week after is when I experienced ON, which then led to a dx of MS. The Dr. said I could have had MS for the last few yrs. I continued not to smoke for the mont...
by singleprego
Sun Apr 05, 2015 3:05 pm
Forum: General Discussion
Topic: Qualitative studies regarding MS
Replies: 1
Views: 1010

Qualitative studies regarding MS

Has anyone found any Qualitative research on MS? I haven't found any and I am interested. For those who don't know what Qualitative research is, it is research performed through the collection of subjective and objective data rather than using raw number data. Quantitative research is what we mostly...
by singleprego
Sun Apr 05, 2015 2:16 pm
Forum: Tecfidera (BG-12, Dimethyl fumarate)
Topic: Tecfidera vs no med
Replies: 8
Views: 10101

Re: Tecfidera vs no med

I was dx officially in Sept '14 after a ON attack in July. I am a RN and I too have decided not to treat with meds. How can one tell if their relapse rate decreases with medication if they haven't determined their relapse rate without medication first? I want to see what my body does for itself. My ...

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