Search found 13 matches
- Thu May 14, 2015 6:30 pm
- Forum: Introductions
- Topic: Hey, Im new here and kind of the minority
- Replies: 14
- Views: 4564
Re: Hey, Im new here and kind of the minority
38 y/o female, RN, dx Sept 2014. Get vibrations in my legs & weakness, lots of fatigue. Fine motor coordination declining (important when drawing up meds), visual acuity steady decline. I went from an active floor nurse to the manager. I think that MS was brought on by the stress of the manageme...
- Fri May 01, 2015 7:33 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: How come no one is posting about their CCSVI procure?
- Replies: 8
- Views: 2382
Re: How come no one is posting about their CCSVI procure?
Thank you for the replies. What keeps you involved in this board?
- Thu Apr 09, 2015 5:15 pm
- Forum: Medical Marijuana
- Topic: Study may explain beneficial effects of marijuana on MS
- Replies: 4
- Views: 4037
Re: Study may explain beneficial effects of marijuana on MS
I saw the neurologist last Tuesday, since it was my first relapse and all. I started smoking weed again on Monday. Had a J every night. Yesterday I the weakness was worse. Today, 3 days after beginning to smoke again, Im back, almost where I left off. Im really thinking the pot helps.
- Thu Apr 09, 2015 5:00 pm
- Forum: General Discussion
- Topic: America’s National MS Society invests $28m in new research
- Replies: 1
- Views: 1156
Re: America’s National MS Society invests $28m in new resear
$52m is why having the solution to MS wouldn't be cost effective... Just sayin'.
- Thu Apr 09, 2015 4:56 pm
- Forum: Undiagnosed
- Topic: There's nothing more I can do than write this stuff
- Replies: 6
- Views: 1530
Re: There's nothing more I can do than write this stuff
Educate your parents about M.S. Hopefully they learn that the disease itself is some fucked up shit. Also the ER will not turn anyone away. A Social Worker there can work with your parents to get insurance.
I wish you well. Hang in there.
Where there's will, there's a way!
I wish you well. Hang in there.
Where there's will, there's a way!
- Thu Apr 09, 2015 4:33 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: How come no one is posting about their CCSVI procure?
- Replies: 8
- Views: 2382
Re: How come no one is posting about their CCSVI procure?
Yeah, I don't have a cool 7k handy either. Thanks for sharing. I hope to read about your next liberation soon.
- Thu Apr 09, 2015 4:28 pm
- Forum: General Discussion
- Topic: Optic Neuritis - how long to recover?
- Replies: 12
- Views: 6738
Re: Optic Neuritis - how long to recover?
I forgot to add that I too got sparklies and the bright flashes. It reminded me of what you see when your pupils dilate after ingesting blotter (that was almost 20 yrs ago, but I still remember). I think its an indication that your eye wiring is getting better.
- Thu Apr 09, 2015 4:22 pm
- Forum: General Discussion
- Topic: Optic Neuritis - how long to recover?
- Replies: 12
- Views: 6738
Re: Optic Neuritis - how long to recover?
My first attack was ON. My ON experience: That day I had played call of duty - all day. Haven't played it in almost a year so when my left eyeball started to get sore, I thought it I had strained it playing video games. It started to hurt more. My eyeball itself hurt, touching around it didn't. Then...
- Wed Apr 08, 2015 4:01 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: How come no one is posting about their CCSVI procure?
- Replies: 8
- Views: 2382
How come no one is posting about their CCSVI procure?
I haven't read any new posts about someone's recent CCSVI treatment. Are people not having it done anymore or am I looking in the wrong spots?
- Wed Apr 08, 2015 3:57 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI and CCVBP
- Replies: 4794
- Views: 773536
Re: CCSVI and CCVBP
I didn't read everyone's conversation but what I picked up in a skim is that the discussion is about vertebral cord compression and fluid restriction. I saw my MRI and at C5 I have an active lesion. C5 is compressing my cord-easily visible on MRI. Over the last few years my chiropractor noticed my C...
- Sun Apr 05, 2015 3:58 pm
- Forum: Medical Marijuana
- Topic: Study may explain beneficial effects of marijuana on MS
- Replies: 4
- Views: 4037
Re: Study may explain beneficial effects of marijuana on MS
I smoked medical marijuana daily for 5 years, with a year break during. I decided to see what life was like without it last July and about a week after is when I experienced ON, which then led to a dx of MS. The Dr. said I could have had MS for the last few yrs. I continued not to smoke for the mont...
- Sun Apr 05, 2015 3:05 pm
- Forum: General Discussion
- Topic: Qualitative studies regarding MS
- Replies: 1
- Views: 1010
Qualitative studies regarding MS
Has anyone found any Qualitative research on MS? I haven't found any and I am interested. For those who don't know what Qualitative research is, it is research performed through the collection of subjective and objective data rather than using raw number data. Quantitative research is what we mostly...
- Sun Apr 05, 2015 2:16 pm
- Forum: Tecfidera (BG-12, Dimethyl fumarate)
- Topic: Tecfidera vs no med
- Replies: 8
- Views: 10101
Re: Tecfidera vs no med
I was dx officially in Sept '14 after a ON attack in July. I am a RN and I too have decided not to treat with meds. How can one tell if their relapse rate decreases with medication if they haven't determined their relapse rate without medication first? I want to see what my body does for itself. My ...