This Is MS Multiple Sclerosis Knowledge & Support Community

I was horrified, when I read this study was only 35 days long! This is not good science, and many factors which are labelled as EAE in mice may not have arisen during this short time period. This is an example of how studies are manipulated in order to satisfy the needs of drug companies, in order t...

Hi there, Aspartane is a known neuro toxin, and it's a shame that it was allowed in so many foods for such a long time. The makers of this agent should all be incarcerated! I am surprised you were told to "never take fish oil," was that due to the possible mercury in the fish? There are so...

Hi Chip, I've had MS for 26 years, and during these years I have had a range of MS symptoms: Unable to walk for 1.5 years, numbness, inability to write, balance, incontinent bladder etc., the list goes on. But, I found the most relief not from an MS medication, but from acupuncture! After I had my f...

I HAD to share my experience with Rebif with you! After being on it for 3 years, I noticed that my hair was beginning to thin; this was extremely distressing for me, as I have always had extremely thick hair. My acupuncture doctor also noticed this. I was so alarmed I spoke with the nurse who works ...

It's unfortunate that we can't get AMPYRA in Canada - what are the doctors afraid of? This drug works, as I have personal experience with it.

Hi Jim, I spoke of Ampyra to my neurologist about 3 weeks ago, and he more or less scoffed in my face! He said there wasn't enough evidence to prove it was efficacious, and he didn't think it was worth trying! I told him that I was on it a few years ago, and I did notice that it helped me. I was fru...

Hi,

I'm in Canada, and I am wondering who prescribed 4-AP to you? A neurologist or another doctor? I took it nearly 19 years ago, and I noticed that it did help me to walk futher. I would like to try it again. Thanks for your response!

Nina

Hi there, it has been over 18 years since I took 4-Aminopyridine for symptoms of MS, and I do not recall which dose I was on - sorry about that. I only took it for a short time, about 3 weeks or so. It's ironic that one of the developers of this drug is Canadian, and the drug is STILL not available ...

Hi,

I was on 4-Aminopyridine in 1992, later to be named Fampridine, and then Ampyra in the States; it was absolutely incredible, as it allowed me to walk unassisted for blocks on end! This was after I was in a wheelchair for a year and a half! I cannot wait until it is finally available in Canada.