Search found 792 matches
- Mon Jan 18, 2016 10:59 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Notes from CureIous' at Stanford
- Replies: 363
- Views: 108902
Re: Notes from CureIous' at Stanford
Oh my Mark! Thank you for sharing this with us. I get an MRI every six months but that is basically it. I go to my Neuro Friday and I am going to ask him if he can see them on the MRI Scan. Prayers for you! Please keep us posted.
- Thu Apr 21, 2011 7:31 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Steve M - 18 months have passed
- Replies: 9
- Views: 3904
- Sat Jan 01, 2011 7:57 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: DrSclafani ASKS a question
- Replies: 109
- Views: 27731
Hi all, it's been a while since I posted anything. to Dr Sclafani: I can say MS tired for me is my husband having to make me get up and go to my desk ( I work from home) when I can hardly move. An sitting at my desk and crying because my brain will not allow me to think in any sort of orderly way. H...
- Fri Oct 15, 2010 8:00 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: My stents are fine at 1 yr
- Replies: 6
- Views: 2526
Rokkit, Glad to hear you had your 1 year appointment went well. I was suppose to go Oct 7th but my job ended and I had to get a new one and go to trying in Chicago for a week. I am trying to reschedule for November when my insurance goes into effect. We will see.. zero brain lesions is awesome!! I a...
- Fri Oct 15, 2010 7:25 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: HEADACHES AND CCSVI
- Replies: 4
- Views: 2530
- Sat Sep 11, 2010 8:24 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Treated for CCSVI almost a YEAR ago! Here's where I stand...
- Replies: 23
- Views: 6664
Hi Rhonda!!! :D :D :D Can you believe it's been a year!! My 1 year was Sept 2nd!! I am doing really good. Like you said doing things this year I could never have done a year ago. I had some numbness on my arms creep up on me last week that had been gone. When I get a headache it scares me but then I...
- Sat Sep 11, 2010 7:32 pm
- Forum: Tysabri (Antegren, Natalizumab)
- Topic: Tysabri drug holiday in multiple sclerosis poorly tolerated
- Replies: 4
- Views: 3294
- Sat Sep 11, 2010 6:54 pm
- Forum: General Discussion
- Topic: IT IS A ROUGH DAY...
- Replies: 15
- Views: 4288
- Sat Jul 17, 2010 8:54 pm
- Forum: Daily Life
- Topic: $tre$$
- Replies: 27
- Views: 7049
- Sat Jul 17, 2010 3:56 pm
- Forum: Daily Life
- Topic: $tre$$
- Replies: 27
- Views: 7049
- Tue May 18, 2010 9:51 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: ALS
- Replies: 17
- Views: 5529
- Tue May 18, 2010 9:41 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Catfreak's Update
- Replies: 28
- Views: 7619
I went to my Neuro today. He heard Dr Zamboni speak in Toronto and he was excited about how well I am doing. I am still his only stent patient but he has a patient going to Huntsville, AL to a Vascular Surgeon for angioplasty. He believes that patients need to get tested and treated for venous block...
- Tue Apr 27, 2010 7:33 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: I 'came out' at local NMSS dinner mtg tonite
- Replies: 52
- Views: 11563
Rose, I understand how you feel. If I did not have this full time job that I need badly, I would be finding a way to travel and talk CCSVI. I live in a very small town and it's like GREEK to those who don't know what it is. They just look at me like I am nuts. I don't even know how a person would st...
- Thu Apr 22, 2010 6:56 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Kuwait didn't wait.....
- Replies: 42
- Views: 10576
- Sat Apr 17, 2010 5:14 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: This fence-sitter is finally going for a doppler!
- Replies: 12
- Views: 2966