Search found 85 matches

by javaneen
Wed May 12, 2010 4:19 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Hi from Jeff, re. my stent treatment at Stanford
Replies: 268
Views: 69020

Yippie! I am so happy for such great news! Thanks for the update!
by javaneen
Mon Mar 22, 2010 7:06 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 2393485

You are very welcome Dr. Sclfani! However, we should be thanking you! Thank you for reading the email from "the crazy lady with MS," reading the research and then diving in to this to help all of us suffering with MS. As EnjoyingTheRide said you could have been coasting in to retirement bu...
by javaneen
Fri Jan 29, 2010 7:24 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: We Must Send a Message to Stanford: Support CCSVI Trial
Replies: 44
Views: 13013

Thanks for putting this all together SJ - I will send my emails on 2/1
by javaneen
Fri Dec 18, 2009 6:22 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: THANK YOU FOR SUPPORTING HOLLY
Replies: 13
Views: 3842

You are in my thoughts Holly! Thanks for posting this for us Jerkbut...haha I have to laugh at the name :lol:
by javaneen
Sun Dec 06, 2009 12:37 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Happy Birthday, Marie-
Replies: 20
Views: 4847

Happy Happy Birthday Marie!!! Enjoy your day!
by javaneen
Wed Nov 25, 2009 8:53 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Oh what a week I'm having!
Replies: 22
Views: 5057

Yippie! Yay! I am so happy for you!
by javaneen
Wed Nov 25, 2009 6:43 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Hi from Jeff, re. my stent treatment at Stanford
Replies: 268
Views: 69020

Joan - I am so happy that you and Jeff are home safe. Thank you again for all you have done. Have a wonderful Thanksgiving! I know you will and Jeff will be Thanked at many thanksgiving tables tomorrow.
by javaneen
Tue Nov 24, 2009 9:53 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Zamboni new publication?
Replies: 27
Views: 8720

I can't find it yet???? Has anyone had any luck?
by javaneen
Thu Nov 19, 2009 12:16 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: MS Society eNews and CCSVI
Replies: 91
Views: 19861

Every year I participate in the MS walk in April with all my friends and family. Together we raise a good amount of money for the NMSS. This year I am thinking of asking my friends and family to donate either to the fund at Stanford, Jacobs or Haacke's. I am planning on getting some sort of website ...
by javaneen
Wed Nov 04, 2009 5:41 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: TEDMED and Boston Scientific
Replies: 1
Views: 1872

I'll try to contact someone at Boston Scientific. I am a cochlear implant audiologist and Advanced Bionics (one of the cochlear implant companies) and Boston Scientific partnered for a while. I think they just separated but I am sure I can call someone at Advanced Bionics who can give me a contact n...
by javaneen
Mon Nov 02, 2009 5:45 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Erika is in Katowice
Replies: 37
Views: 7665

Please send Erika our wishes. Her determination has paid off. Good for her. Here's to a speedy recovery!
by javaneen
Wed Oct 14, 2009 4:31 pm
Forum: Regimens
Topic: Marie's Stents CCSVI
Replies: 180
Views: 50276

Wow Marie! That is absolutly fantastic news! I am so happy for you! I hope and pray that you continue to see improvement as time goes on. Thanks for the update!
by javaneen
Mon Oct 12, 2009 10:04 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Anyone contacted prof. Zamboni?
Replies: 16
Views: 5786

Radeck - it is talking about the rate of relapse free patients went from 27% to 50% rather than talking about the rate of relapse. Great find... rates of relapse- free patients passed from 27% to 50% postoperatively Here is the entire abstract... Objective: Chronic cerebrospinal venous insufficiency...
by javaneen
Tue Oct 06, 2009 11:29 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Rokkit goes to Stanford
Replies: 38
Views: 7031

Sending my prayers Rokkit. Good luck with everything!
by javaneen
Fri Oct 02, 2009 4:04 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Holly's Obituary and Donation Fund
Replies: 17
Views: 6245

Thank you Cheryle and Sharon for posting this for us and giving us a way to make a donation in Holly's memory. Thank you so much for putting all this together Cheryle. The MS innovations fund sounds like something that would make Holly very happy. This really is an amazing community!

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