This Is MS Multiple Sclerosis Knowledge & Support Community

Hi,

My husband is on the clinical trial for the FTY720 (he is PPMS).
He started January 14 2009. (The Netherlands)
The dosis was 1,25 mg, but today they told us de new dosis will be 0,75 mg.
Does anyone know if there is a reason for that?

Tyssbri didn't help PPMS the VUMC told us, alswell as LND and Novantrone.y

Thanks you, Scorpion.

Hi Smilingface, Thanks for your reaction. We are very greatfull Rob can join this study because there is no alternative drug. We don't know about his White blood cel count, we never see any results from the bloodtests (is that the right word for that?)? Because I am dutch not every medical term is f...

Hi, My name is Astrid and I am from The Netherlands. My husband (Rob) is diagnosed with PPMS in August 2006. Since January 2009 het is on the new FTY 720 trial for PPMS. We are 41 en 45 years old, no kids, own business wich I run on my own now. Rob is getting worse everyday and we think he has side-...

Hi, My name is Astrid and I am from The Netherlands. My husband (Rob) is diagnosed with PPMS in August 2006. Since January 2009 het is on the new FTY 720 trial for PPMS. We are 41 en 45 years old, no kids, own business wich I run on my own now. Rob is getting worse everyday and we think he has side-...

Hi, My name is Astrid and I am from The Netherlands. My husband (Rob) is diagnosed with PPMS in August 2006. Since January 2009 het is on the new FTY 720 trial for PPMS. We are 41 en 45 years old, no kids, own business wich I run on my own now. Rob is getting worse everyday and we think he has side-...

Hi, My name is Astrid and I am from The Netherlands. My husband (Rob) is diagnosed with PPMS in August 2006. Since January 2009 het is on the new FTY 720 trial for PPMS. We are 41 en 45 years old, no kids, own business witch I run on my own now. Rob is getting worse everyday and we think he has side...