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Yes -- was wondering too.

Hi, Yes -- the media can be deceptive. It is true Pakistan has dangers (Have been there so I speak from experience!) but then didn't London in the 1970s at the height of the IRA campaign? I wasn't blown up or kidnapped! People there are icredibly hospitable -- glad to see a doctor doing this there! ...

Have had two doses (12mg) with minimal side effects. Considering a third to try and slow down worsening RRMS.

Like Nicko, from what I have read the worse problems come (leukaemia, cardiac toxicity) in doses over 100mg -- so will avoid that mark!

How did your first infusion go Weebie?

Camilla

Thanks -- will explore that. Interesting

Camilla

Yes -- a bit hesitant on that. Trying to find someone who can do a decent ultrasound, following Zamboni.

Camilla

One vascular surgeon wants to do a venography -- thinking about wether to go for one.

Camilla

Thanks Cure -- yes; they don't see stenosis. Also consulting a vascular surgeon who 'believes' in CCSVI.

Yes, my experience is a bit like yours. A negative, but is it reslly one? Am going to have a closer look at my images!

Cheers

Camilla

Yes Guru, I did! I live in the UK but had no luck here. Karachi has an Aga Khan Hospital, one in Nairobi too -- but I need someone to look at the images for me! Have also asked a vascular surgeon friend (in the UK) to have a look, but he couldn't see stenosis immediately. Manoj ji, Adab! Thanks for ...

This may be a better, bigger image!


http://s802.photobucket.com/albums/yy30 ... postupload

Thanks Costume -- your advice is good, and I have every intention of going carefully!

The images get bigger if you click on them!

Camilla

Hi all! This is a link to my MRV image. Negative report -- but I haven't given up! This is the start for me. Would love expert comment. After Manoj's experience, ready to go to India for surgery! Have links there, and in Pakistan. http://s802.photobucket.com/albums/yy308/Camilla5/?action=postuploads...

Hi everyone, I have a friend in New Delhi (with MS!) who is going to try the Aga Khan Hospital in Karachi (supposed to be very good) and another state of the art facility in the UAE to get her testing one. The neurologists she is working with seem far more knowledgable than drs here (in the UK!) Cam...

Thanks! Will let you know. Am working on my doctor right now to prescribe it. Lets see what he says.

Cheers and thanks again

Camilla

Hi, My MS has gradually worsened (walking more unstable) over a year, and my neuro suggested I look at Novantrone as an option -- see ehat 3 doses woul;d do etc. I was wondering though, if I went for this option would it complicate using Campath -- or Revimmune -- in the future? Was thinking in term...

Hi, My MS has gradually worsened (walking more unstable) over a year, and my neuro suggested I look at Novantrone as an option -- see ehat 3 doses woul;d do etc. I was wondering though, if I went for this option would it complicate using Campath -- or Revimmune -- in the future? Was thinking in term...