Search found 63 matches

by cathyb
Sun May 13, 2012 5:50 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I was interviewed on CBC News regarding CCSVI and FDA
Replies: 18
Views: 4169

Re: I was interviewed on CBC News regarding CCSVI and FDA

I thought it was a great interview! You came across as very informed, calm, collected, and like someone that knows what they are saying. Frankly, I thought you looked like a college professor, and one that might get their student's attention to boot ;)

Thank you for all you do!
by cathyb
Wed Jan 18, 2012 5:55 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Montel's announcement
Replies: 228
Views: 50905

Re: Montel's announcement

Has anyone heard anything from Montel about how he is feeling? Just curious. I checked his FB page but there isn't a lot of discussion.
by cathyb
Tue Oct 11, 2011 1:18 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: still sad about scan results
Replies: 12
Views: 2159

Re: still sad about scan results

I am in no way telling you what you should do, but the doppler does not show problems with the azygos. Just sayin maybe you should ask about that part of it. My biggest problems were with it and I feel GREAT these days. Seriously.

:)
Good Luck!
Cathy
by cathyb
Fri Sep 16, 2011 6:42 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: mtf up-date!
Replies: 16
Views: 2908

Re: mtf up-date!

Hi. I got the procedure a month ago. Incredible improvements that remain with me. BUT, today I found out my left IJV clotted and has formed a collateral to avoid the clot (I was absolutely shocked by the news). Are clots always the end of the world? PLEASE tell me NO! :) (first procedure), and I rea...
by cathyb
Wed Aug 10, 2011 4:45 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: No Cerebral or Cervical Venous Insufficiency in US Veterans
Replies: 21
Views: 5126

I truly question these testers. Too many folks who were tested with MRV, or Doppler and deemed Not to have CCSVI have been later found ( at another center or via venogram) to indeed have it. I don't believe everyone does but it seems that the majority do. The only true way to know you do not have i...
by cathyb
Sat Jul 09, 2011 9:10 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: No stenosis found in dopple study- Japanese MS/NMO patients
Replies: 18
Views: 4445

What's the deal with these newest published studies. This is the second recent study where the researchers didn't find ANY problems at all with the MS group! Isn't not finding something 100% of the time just as unbelievable as finding something 100% of the time? Are these researchers concluding that...
by cathyb
Tue Jul 05, 2011 5:34 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Australian research not finding CCSVI in subjects
Replies: 17
Views: 4662

To date we have studied 35 people with MS and 35 healthy control subjects, so we are just over one third of the way towards completion,” reports A/Prof Chambers. “Preliminary blinded analysis of the whole 70 cases, using the criteria proposed by Zamboni, indicates that CCSVI (chronic cerebrospinal ...
by cathyb
Tue Jun 28, 2011 3:45 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Weird eye symptoms? Help?
Replies: 77
Views: 12845

Thank you! When you wake up with blurred vision, is it blurry both far away and up close (or just one or the other)? When you wake up, do you ever have a feeling of fullness or head pressure? Can I ask you if the eye pain is in both eyes, or just one? Does it feel like it's on the surface (like ext...
by cathyb
Tue Jun 28, 2011 1:37 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Weird eye symptoms? Help?
Replies: 77
Views: 12845

Lets see... Blurry vision upon waking up that resolves in about an hour Eye pain, like someone is sticking a needle in my eye Floaters Twitchy eyelids (I was always told it's because I'm tired) My one major bout with ON was that all the color left the world, it looked everything was white. Steroids ...
by cathyb
Fri Jun 17, 2011 3:29 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: WeWillBeatMS in Brooklyn for Liberation 6/11/11
Replies: 34
Views: 8876

But the three days following the procedure my wife could barely keep up with me cause I felt so good as we went all over NYC from early morning until at least 9pm sometimes later. Hi! So, not to split hairs, but did Dr. S do the procedure even though he found no reflux and you have excellent veins?...
by cathyb
Wed Jun 15, 2011 4:40 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: WeWillBeatMS in Brooklyn for Liberation 6/11/11
Replies: 34
Views: 8876

Any word? I am so curious, and SO so so hoping for the best!
by cathyb
Sat Jun 11, 2011 6:30 pm
Forum: Copaxone
Topic: Enrollment completed in Phase III Copaxone MS trial
Replies: 1
Views: 2287

Ugh, Mark Freedman.
by cathyb
Sat Jun 11, 2011 6:24 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: WeWillBeatMS in Brooklyn for Liberation 6/11/11
Replies: 34
Views: 8876

My thoughts are with you, and I am sending you good thoughts and positive energy.
by cathyb
Wed Jun 08, 2011 9:46 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Aetna
Replies: 13
Views: 3067

Has Aetna been covering the scan and treatment (if necessary)? I'm just curious. I have Aetna and an appointment at AAC on Monday the 14th. I can cover the scan if Aetna doen't, but if they find a problem (which in some ways I hope they do!) I am wondering if I'm on the hook for the procedure. Oh, a...
by cathyb
Mon Apr 25, 2011 5:29 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: COULD WE BE GETTING CLOSER TO THE END???
Replies: 5
Views: 2235

I love this: "MS is so much easier to treat in mice than in humans, he said, that researchers sometimes joke that rattling the cage will cure the disease in laboratory animals." Why don't any of these researchers stop for a minute and think to themselves that maybe MS in mice is easy to cu...

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