Search found 48 matches
- Fri Apr 21, 2017 11:55 pm
- Forum: Undiagnosed
- Topic: MS or another disease? Too many symptoms, 19 years old
- Replies: 6
- Views: 2615
Re: MS or another disease? Too many symptoms, 19 years old
Hi My sister has a similar issue as the one mentioned. She has symptoms similar to MS such as numbness and weakness of limbs, paresthesia, optical neuritis but the MRI does not show lesssions and the oligoclonalbands are coming negative in the blood tests. The doctors suspect her of antiphospolilidi...
- Sun Feb 22, 2015 12:08 am
- Forum: Regimens
- Topic: Helminthic Therapy
- Replies: 1
- Views: 2953
Helminthic Therapy
Dear All, I am on Gylenia since September 2014 and I would like to start the Helminthic Therapy but I am worried that since I am already under an immuno supressant medication I may be exposing myself to too many risks as my body immune response to any other viruses/ cancer would be completly incapac...
- Sat Jan 12, 2013 9:41 am
- Forum: Introductions
- Topic: Ayurveda treatment for MS
- Replies: 20
- Views: 15168
Re: Ayurveda treatment for MS
Could you share with the other members on the forum with which doctors and in which places you obtained good results?
- Tue Feb 07, 2012 9:58 am
- Forum: General Discussion
- Topic: Weird kind of Numbness
- Replies: 8
- Views: 2267
Re: Weird kind of Numbness
Hi there,
I had the exactly same sensation on my legs 3 weeks ago. My neuro said it is called paresthesia and he wasn't sure if it was due to an attack or not. I am scheduled for an MRI to figure that out.
Do you have this sensation all the time or it comes and goes?
I had the exactly same sensation on my legs 3 weeks ago. My neuro said it is called paresthesia and he wasn't sure if it was due to an attack or not. I am scheduled for an MRI to figure that out.
Do you have this sensation all the time or it comes and goes?
- Mon Jan 16, 2012 11:43 pm
- Forum: Campath (Lemtrada, Alemtuzumab)
- Topic: Successful phase III results for Alemtuzumab (Lemtrada(TM*))
- Replies: 14
- Views: 8372
Re: Successful phase III results for Alemtuzumab (Lemtrada(T
HI Raven,
What was the protocol you followed with Campath?
Do you know in general which are the results of the patients? I've been reading on the internet that the efficiency is around 48%. Which is your view over it?
What was the protocol you followed with Campath?
Do you know in general which are the results of the patients? I've been reading on the internet that the efficiency is around 48%. Which is your view over it?
- Sat Nov 19, 2011 12:21 am
- Forum: Drug Pipeline
- Topic: Betaferone in Dubai
- Replies: 5
- Views: 3890
Re: Betaferone in Dubai
Hi there,
You can go any neurologist in Dubai and the hospital will arrange the betaferon for you.
I prefer 3 hospitals in UAE: neurospinal, city hospital and welcare hospital.
Just book an appointment with a neurologist and ask for betaferon prescription.
You can go any neurologist in Dubai and the hospital will arrange the betaferon for you.
I prefer 3 hospitals in UAE: neurospinal, city hospital and welcare hospital.
Just book an appointment with a neurologist and ask for betaferon prescription.
- Sun Oct 02, 2011 5:13 am
- Forum: Avonex
- Topic: Avonex side efects two times in the week
- Replies: 2
- Views: 5095
Re: Avonex side efects two times in the week
Hi,
I had the same problem on Avonex. She should discuss with her neurologist first and do a 6 months follow up MRI to see if Avonex is working or not. The side effects will reduce in time, for me it took about 5 months. I never felt really good on Avonex so eventually I changed to another CRAB.
I had the same problem on Avonex. She should discuss with her neurologist first and do a 6 months follow up MRI to see if Avonex is working or not. The side effects will reduce in time, for me it took about 5 months. I never felt really good on Avonex so eventually I changed to another CRAB.
- Fri Sep 16, 2011 1:20 am
- Forum: Rebif
- Topic: rebif & hair loss
- Replies: 5
- Views: 4976
Re: rebif & hair loss
I had the same problems on Avonex and Betaferon. However, the hair fall reduces after about 4-6 months. My doctor changed my multivitamin to one that has iron too and prescribed me an anti hair fall product from the market, from pharmacies (Vichy). It did help.
- Mon Aug 15, 2011 11:31 am
- Forum: Avonex
- Topic: Avonex, Betaferon or Rebif?
- Replies: 19
- Views: 14334
Avonex, Betaferon or Rebif
Hi Marcia,
I live in Dubai since 2007 and the medical services are very good and so are the doctors. The company will provide you an insurance that will fully cover your medication. Getting Rebif in UAE is not a problem at all.
Good luck
I live in Dubai since 2007 and the medical services are very good and so are the doctors. The company will provide you an insurance that will fully cover your medication. Getting Rebif in UAE is not a problem at all.
Good luck
- Tue Jul 12, 2011 10:41 pm
- Forum: General Discussion
- Topic: What are your STRANGEST symptoms?
- Replies: 9
- Views: 2235
Strange symptoms
HI Dr. Diana, I had severe hair loss last year on Avonex to the point that I almost got bold. Then the hair growth started. This year, on Betaferon, I am again having bad hair loss. So I am not sure if it is the interferons or the MS. Another symptom that bothers me a lot is that if I talk on the ph...
- Tue Jul 05, 2011 10:17 am
- Forum: Stem Cells
- Topic: 18 month post-HSCT and still going strong
- Replies: 16
- Views: 7478
Post transplant
Hi George, You are an example for all of us. I am also in the initial stages of RRMS with 4 brain lessions and 3 spinal ones and a zero EDSS score. I contacted Heidelberg and plan to visit them soon as mentioned before. Can you tell me if you recommend me to the procedure now or wait? Wish you lots ...
- Sat Apr 16, 2011 3:36 am
- Forum: General Discussion
- Topic: Are there any other citizens of Limbo Land?
- Replies: 1
- Views: 1745
limbo land
A neurologist should run a few tests: Brain and cervical MRI, preferably 3Tesla, lumbur puncture, blood tests to make sure no other condition could cause the same symptoms. McDonald Criteria for MS sais you eitehr have 9 lessions and 2 consecutive attacks of different types, or lessions and the olli...
- Mon Apr 04, 2011 9:03 pm
- Forum: General Discussion
- Topic: Insurance coverage for MS in Holland
- Replies: 0
- Views: 1361
Insurance coverage for MS in Holland
I am currently living in Dubai and planning to move to Holland with work, as I can no longer tolerate the summers in the desert. Please let me know if MS treatments are covered in Holland and how the insurance and medical system functions.
- Mon Mar 21, 2011 12:31 am
- Forum: Avonex
- Topic: starting avonex
- Replies: 8
- Views: 6090
Stem cells
Dear Georgegoss, I had a discussion with my neurologyst yeasterday about stem cells transplant and although against it at the beginigng, he listened to me. He had some questions and hope you can help us with obtaining the answers: - did you perform an MRI post transplant, after the one year period? ...
- Sun Mar 20, 2011 9:32 am
- Forum: Avonex
- Topic: Avonex efficiency
- Replies: 0
- Views: 3257
Avonex efficiency
So my one year of Avonex finished and went for MRI. First, did the brain MRI that showed no new lessions: what a happiness. Then, did the cervical MRI and surprise: 3 new lessions. One 8mm, one 8.5mm and 1.2cm. I am so so scared...what does this mean? Is Avonex not working properly for me? So I aske...