Search found 130 matches

by Jimpsull
Tue Apr 14, 2015 3:11 am
Forum: Biotin (Qizenday, Cerenday, MD1003)
Topic: Progressive MS treatment phase III study update
Replies: 51
Views: 26431

Re: Progressive MS treatment phase III study update

Another principle I am going to apply in my study size n=1 is to assume that foods containing biotin also contain elements that assist the body in the uptake of biotin. As practical I will eat a few peanuts or a little Swiss chard with my hourly biotin 10 mg biotin dose. I'm Going to keep a log. I'm...
by Jimpsull
Mon Apr 13, 2015 11:44 pm
Forum: Biotin (Qizenday, Cerenday, MD1003)
Topic: Progressive MS treatment phase III study update
Replies: 51
Views: 26431

Re: Progressive MS treatment phase III study update

The pharma grade pure biotin I found was only about $166 per kg. that's 1000000 mg or about 333 days at 300 mg per day. But it would be hard to control dosing. Since the half life of biotin is about 2 hours and any excess gets pissed out, I want to divide my daily dosage evenly throughout the day. I...
by Jimpsull
Sun Apr 12, 2015 9:51 am
Forum: Daily Life
Topic: Husband is not supportive whatsoever
Replies: 5
Views: 4968

Re: Husband is not supportive whatsoever

Marriages have challenges (with or without MS). You need to talk with each other. During the first few years after my diagnosis my wife seemed very unsupportive. She believes in "mind over matter" and felt that talking about it or thinking about MS would give me excuses for laziness, encou...
by Jimpsull
Sat Apr 11, 2015 7:50 pm
Forum: Chiropractic Treatment
Topic: Nucca and when it goes bad
Replies: 8
Views: 12953

Re: Nucca and when it goes bad

Just looked up Chilliwack BC. It is less than 3 hours from Dr Yardley's practice in Kent, WA. I'll ask him if he knows of any reputable NUCCA practitioners in BC.

Jim
by Jimpsull
Sat Apr 11, 2015 7:30 pm
Forum: Chiropractic Treatment
Topic: Nucca and when it goes bad
Replies: 8
Views: 12953

Re: Nucca and when it goes bad

Sorry - just noticed your locale is Chilliwack BC - I'll see if Dr Yardley can recommend anyone.
by Jimpsull
Sat Apr 11, 2015 7:29 pm
Forum: Chiropractic Treatment
Topic: Nucca and when it goes bad
Replies: 8
Views: 12953

Re: Nucca and when it goes bad

Where are you? I could ask Dr Yardley for a recommendation in that area.

Jim
by Jimpsull
Sat Apr 11, 2015 7:23 pm
Forum: Copaxone
Topic: how does one judge treatment failure?
Replies: 2
Views: 6610

Re: how does one judge treatment failure?

This is a tough question -we don't know what is and isn't helping and how much. I encourage you to add swank diet back to your regimen (in addition to copaxone). CRAB drugs show reduction in relapse rates but none of them come close to approaching Swank diets 34 year impact on disease progression. W...
by Jimpsull
Sat Apr 11, 2015 7:06 pm
Forum: Copaxone
Topic: Copaxone and high blood pressure
Replies: 1
Views: 5488

Re: Copaxone and high blood pressure

I took copaxone from 2003 - 2013 and again since the beginning of this year. I have seen my bp drop from 150 / 90 to 120 / 70 since going on the Swank diet. I have never seen a correlation between copaxone and bp.

Jim
by Jimpsull
Sun Jan 04, 2015 11:53 pm
Forum: Tecfidera (BG-12, Dimethyl fumarate)
Topic: Have you switched to Tecfidera? Are you glad you did?
Replies: 31
Views: 15225

Re: Have you switched to Tecfidera? Are you glad you did?

I was on Tecfidera for 17 months. I did well on it ms wise and had no perceptible side effects, however total lymphocytes were low and continuing to fall. As of dec 28 I am on no meds. Will go back on copaxone once lymphocytes rebound.
by Jimpsull
Tue Dec 30, 2014 10:29 pm
Forum: Tecfidera (BG-12, Dimethyl fumarate)
Topic: Problems I wonder if anyone has encountered.
Replies: 2
Views: 3298

Re: Problems I wonder if anyone has encountered.

I am quitting Tecfidera due to lymphopenia
by Jimpsull
Tue Dec 30, 2014 10:18 pm
Forum: Tecfidera (BG-12, Dimethyl fumarate)
Topic: Elevated Liver Numbers!
Replies: 4
Views: 4129

Re: Elevated Liver Numbers!

I am quitting Tecfidera due to sustained low total lymphocytes
by Jimpsull
Sun Dec 28, 2014 2:56 am
Forum: Daily Life
Topic: Lasic eye correction
Replies: 0
Views: 2222

Lasic eye correction

I've always wanted to get my vision surgically corrected. At the consultation the surgeon said MS precludes me from lasic because I may move during surgery.

Can't they strap me in place? Anyone with MS have lasic done for near sightedness?
by Jimpsull
Sun Dec 28, 2014 2:50 am
Forum: Daily Life
Topic: Erectile Dysfunction?
Replies: 14
Views: 8963

Re: Erectile Dysfunction?

The e.d medicines are really good. I've done the healthy eating and nutritional supplements but nothing has been as sure as Levitra or Viagra. If cost gets to be an issue I've heard there are countries where Viagra is generic (it has been on the market more than 15 years). I've heard they ship inter...
by Jimpsull
Sun Dec 28, 2014 2:35 am
Forum: Daily Life
Topic: I am wondering how much MS will limit my future
Replies: 7
Views: 5024

Re: I am wondering how much MS will limit my future

Don't lose heart. I was diagnosed in grad school in 2003 and it hasn't interfered with my career as an engineer. Read up on the research of dr Roy swank and then get on his diet. The MS drugs reduce relapses but aren't proven to reduce disease progression. The swank diet showed the ability to preven...
by Jimpsull
Sun Dec 28, 2014 2:27 am
Forum: Daily Life
Topic: So, what is the most affordable treatment for MS?
Replies: 23
Views: 15084

Re: So, what is the most affordable treatment for MS?

Low dose naltrexone also has been helpful for many with MS and it's generic. You have to get it from a formulary pharmacy. About $40 a month when I tried it.

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