I can run!

freiguy · Post by **freiguy** » Tue Jul 22, 2008 7:23 am

Thanks for the info. I guess for those of us who are part of the campath brotherhood it will be a wait and see thing.

Jaded · Post by **Jaded** » Tue Jul 22, 2008 2:00 pm

Hi raven

That's brilliant news about your run! Amazing the things you miss when you realise you can no longer do them.

I did used to be a runner but gave it up due to a knee injury - what a sissy I was!

Please do continue to tell us about your progress. It gives us hope. Good luck with the training

I have spinal lesions like yourself, so my existing/potential deficits are similar. I hope campath is approved soon for all of us - and before I get to the latter stages of rrms, whatever that is deemed to be!!!!!!!!!!

best wishes

J.

freiguy · Post by **freiguy** » Tue Jul 22, 2008 3:25 pm

Jaded,
I will post here as often as I can with updates from my experience. I am new to the treatment - only completing the first round of infusions last week. I have a rather clean brain mri with the activity being two lesions on my spine. My problems revolved around numbnessand tingling in the feet/lower legs, bladder issues, and the absolute worst symptom for me...vertigo. I am also new to the MS diagnosis since I found out about it in March/April of this year. Good luck with everything.

Jaded · Post by **Jaded** » Wed Jul 23, 2008 5:48 am

Thank you freiguy.

I wish you well with your treatment and pray you have caught it in time to avoid any permanent damage.

I have some residual damage in my leg, although I try to exercise to keep the muscles that I can feel in good shape, it can be limiting........even as far as walking is concerned.

best wishes and thank you all for your updates.

J.

CureOrBust · Post by **CureOrBust** » Sun Sep 28, 2008 4:15 am

How is your running / jogging going? have you been practising? improving?

queenie · Post by **queenie** » Thu Jun 04, 2009 6:31 pm

For all you old-timers, I am a "new timer. Just got the Campath in April. Feeling good, but don't know what to think about success.
Would love to hear your continued experiences...

sara33 · Post by **sara33** » Sun Jun 21, 2009 10:14 am

this is great news for you. i start tomorrow, and i hope i have such results. my main problem is my eyes and fatigue.

raven · Post by **raven** » Sun Sep 26, 2010 12:24 pm

Cure,

I must admit I haven't been practising. It's strange but MS has been relegated to history for me. I still have deficits, which I can deal with day to day, they do not stop me living a full life and working way too hard than is probably good for me.

I'm sorry to all those asking for updates from the 'old-timers'. I suspect that like me, many do not visit ThisIsMS with anything like the frequency we used to (Bromley, you still lurking around???). MS just isn't the spectre of doom that it once was.

Still no relapses since treatment.

Take care all.

Robin

Lyon · Post by **Lyon** » Sun Sep 26, 2010 1:28 pm

CureOrBust · Post by **CureOrBust** » Sun Sep 26, 2010 4:12 pm

raven wrote:Still no relapses since treatment.

Good to hear.

Lyon · Post by **Lyon** » Sun Sep 26, 2010 6:10 pm

Jaded · Post by **Jaded** » Fri Oct 01, 2010 9:38 am

Better late than never that's what I say Lyon!

That's great news raven. I have had some deterioration and if campath is available it would be the drug of choice for me.

J.

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