Just FedExed My Records to JH.
-
- Family Elder
- Posts: 1161
- Joined: Thu Sep 14, 2006 2:00 pm
- Contact:
I never even tried to convince him. I told him my thoughts and he didn't flinch. My grandpa rest his soul used to say, "Chris, you cannot argue with a fool so stop trying!" lol I was done with the conversation in three sentences then we started talking football lol.
He is a really smart guy no doubt about it. It is his right and his choice. I can't change it but I'm sure as hell allowed to disagree and have my opinion.
He is a really smart guy no doubt about it. It is his right and his choice. I can't change it but I'm sure as hell allowed to disagree and have my opinion.
-
- Family Elder
- Posts: 1161
- Joined: Thu Sep 14, 2006 2:00 pm
- Contact:
-
- Family Elder
- Posts: 1161
- Joined: Thu Sep 14, 2006 2:00 pm
- Contact:
Yesterday was great, yes.
The most impressive thing was he just spoke plain sense and was very honest.
Especially interesting to me and something I wasn't aware of was that they consider MS to have a similar underlying physiology to SAA and SAA is where they have seen the best results.
In fact he is confidently able to say to someone with SAA that this has a 70% chance of curing you.
Wouldn't it be wonderful if with MS it was the same or better? Only time will tell.
More appointments this afternoon then tomorrow for the hickman and first dose!
Mel's v.scared but coping well, four more days of MS for the next few years. That's the 'endpoint' we're hoping for. Anything better we'll take of course!!!
The most impressive thing was he just spoke plain sense and was very honest.
Especially interesting to me and something I wasn't aware of was that they consider MS to have a similar underlying physiology to SAA and SAA is where they have seen the best results.
In fact he is confidently able to say to someone with SAA that this has a 70% chance of curing you.
Wouldn't it be wonderful if with MS it was the same or better? Only time will tell.
More appointments this afternoon then tomorrow for the hickman and first dose!
Mel's v.scared but coping well, four more days of MS for the next few years. That's the 'endpoint' we're hoping for. Anything better we'll take of course!!!
-
- Family Elder
- Posts: 1161
- Joined: Thu Sep 14, 2006 2:00 pm
- Contact:
Even better for those who do get their disease back there's no reason not to do this agian if something better hasn't come along.
He used the example of someone with MG, after 4 years it came back. She did the treatment again and is again disease and drug free.
Of course if your MS came back every six months then you wouldn't really keep doing it.
The copaxone part is IMO the most exciting bit.
It makes perfect logical sense and you would be preempting the 'trigger' in essence.
I don't have any religion at all but I've been tempted to thank god for these people.
Brodsky is a director according to his business card and he is the first doctor we've seen through all of this that was sitting waiting in an exam room for us, usually it's sit there and wait for 45mins for a 5 min cursory chat.
He didn't even seem to mind my dumb questions.
To be fair though Dr. Kerr was also awesome as was Dr. Hammond and everyone else.
She couldn't be in better hands.
Right, we're off to register and sign all the consent forms, admitted tomorrow.
Weather is fabulous in Baltimore !
He used the example of someone with MG, after 4 years it came back. She did the treatment again and is again disease and drug free.
Of course if your MS came back every six months then you wouldn't really keep doing it.
The copaxone part is IMO the most exciting bit.
It makes perfect logical sense and you would be preempting the 'trigger' in essence.
I don't have any religion at all but I've been tempted to thank god for these people.
Brodsky is a director according to his business card and he is the first doctor we've seen through all of this that was sitting waiting in an exam room for us, usually it's sit there and wait for 45mins for a 5 min cursory chat.
He didn't even seem to mind my dumb questions.
To be fair though Dr. Kerr was also awesome as was Dr. Hammond and everyone else.
She couldn't be in better hands.
Right, we're off to register and sign all the consent forms, admitted tomorrow.
Weather is fabulous in Baltimore !
-
- Family Elder
- Posts: 1161
- Joined: Thu Sep 14, 2006 2:00 pm
- Contact:
-
- Family Elder
- Posts: 1161
- Joined: Thu Sep 14, 2006 2:00 pm
- Contact:
They need to see you in person and agree that you have MS. Evidentially they liked your MRI.
If after the initial visit they say yes and you go home and get all the lab work done.
I have not heard of anyone who has had to go to Baltimore to be told no.
From what I have been told you need to have an active MRI for them to see you at all!
Congrads!
If after the initial visit they say yes and you go home and get all the lab work done.
I have not heard of anyone who has had to go to Baltimore to be told no.
From what I have been told you need to have an active MRI for them to see you at all!
Congrads!