DrGeoff wrote:I'm not a Facebook member either, but I have a friend who is.
He tells me that the video link given is "unavailable", and so is the "Biotin for progressive MS" group.
For most people here the information is useless.
Since the Med-day trial results suggest that the effects start to show between 3 and 9 months, I am somewhat sceptical about a man walking after only three weeks.
Geoff
I agree. Neither am I face-literate, but I have been trying to cope with my friend's misdirection by it:
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Yes, it can be bad if you want to take 30 a day. I would not give that much lactose or cellulose to a horse. Lactose is a protein, and aside from the hullabaloo about tolerance, that much might do in your kidneys. I was taking a time-release vitamin C which I blamed for 1 of my several bouts of kidney stones. People liken it to childbirth, but I had one doc say he'd seen a very small stone take down a very big man.
Don't say I didn't warn you. Biotin is probably also some kind of protein, but my body somehow has tolerated it so far. I'm going in for a kidney enzyme test Monday.
See this stuff is produced by gut bacteria, and they don't know what happens if you can't make any, but I have my suspicions about it helping digestion.
> the biotin from amazon is in tablet form. think 30 a day will still be bad?
>>
>> You don't want less than 300mg per day, or that much filler. Don't bother. Compounding pharmacists don't like working without a prescription. Even if you buy pre-compounded from Skip's Pharmacy in Florida, (he sells the same biotin used in the French trial) he likes prescriptions. Something about liabilty...
>>
>> Don't take 30 a day of anything. You'd be consuming too much filler (cellulose or lactose) and too much gelatin.
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>> Skip is probably cheaper than Ottawa compounders if you can get a prescription. Your mileage may vary. Not responsible.
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>> I bought 250 grams for I forget, probably 800 bucks $US. You don't want more than that because the shelf life is 2 years.
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>> It will last me that long, which is twice as long as the trial.
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>> They are probably delaying the market to give people a chance to buy 2 years' worth of useless, harmful DMDs for $50,000 a year $US.
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>> It sounds complicated, but my PSW and I had fun playing drug dealer, compounding 100 of them, one afternoon about a month ago.
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>> (Kanata Buyers' Club)
>>
>>> I just found Biotin 10,000mcg (10mg) 100 tabs for 19.99 at amazon. so if I buy 5 containers and take 30 a day it will last me 16 days at a cost of approx 100bucks. so 200 bucks if I did that for one month! Anyways, what is your cost doing it the way you told me? I am thinking of trying 200 mg a day for a month to see if any benefit and lessen the cost. What do ya think?
>>>
>>>
>>>>
>>>> Re Biotin:
>>>>
>>>> Not a cure, but I have seen very gradual improvement. Can do 30+ sit-to-stands and get on and off tricycle by myself...
>>>>
>>>> The thread:
>>>>
>>>>
http://www.thisisms.com/forum/chronic-c ... 26705.html
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>>>> contains my words on that score. It also contains some of my pictures and music.
>>>>
>>>> If worried about product from China, buy North American. I got my capsule machine from china and it works but only for 00 size capsules. I would advise that size anyway because they handle easier and there`s lots of room for filler. To be really precise with filler you may need to find out the powder density of both biotin and filler, and calculate based on the ratio you use in your mix. I have not done this myself yet. The procedure I followed was to fill caps with the spreader tool to the top of the long half, with no tamping. This results in too much biotin, so my next batch I will try to get some cellulose filler. I have not had any ill effects from using up to 500mg of biotin per day for about 2 months now.
>>>>
>>>> Also see
http://www.thisisms.com/forum/general-d ... 26870.html
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