EP is a community where members connect through shared life experiences-- like MS--and so much more. You are not defined by any one thing, so be your true self and find others just like you at
Experience Project.
Joined: Sep 10, 2008 Posts: 4 Location: California
Posted: Thu Sep 11, 2008 11:15 am Post subject: Hi from California
I love this website!
My uncle has secondary-progressive MS. He was being treated with chemotherapy with Mitazantrone, but had to stop the treatments because they were damaging his heart. I joined the website to help him stay informed about new treatments for SPMS.
Joined: May 04, 2006 Posts: 3456 Location: Mid-Michigan
Posted: Sat Sep 13, 2008 12:25 pm Post subject:
Welcome to the site Bovellido and your uncle is lucky to have your interest in his welfare to his advantage.
There are a lot of people in the same boat that your uncle is in. Obviously having MS is not a good thing and having SPMS/PPMS seems much more hopeless than RRMS. I think with research you will find that the situation isn't as hopeless for SPMS/PPMS as it it might seem at first glance.
Bob _________________ Wife diagnosed with RRMS in Feb. 2006.
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We encourage you to also visit our Multiple Sclerosis story and support community on Experience Project.
Experience Project is a vast and powerful community where people connect anonymously through life experiences. It's made by the same people who built This is MS,
on the premise that no one life experience-- like having MS-- defines a person. It now covers over 2 million life stories. Find and share yours!